Living with Dying

Grief and Parenting in the Disability Community

In this blog post, Carrie writes about being the parent and primary caregiver to a child with disabilities and grieving the loss of a child dying from their disabilities.

Susan – “Living life”

Susan discuss what it means to live life well.

Susan – “Beliefs”

Susan shares her personal thoughts on beliefs and what happens after you die.

Susan – “Music”

Susan explains the value of listening to music and how it comforts her.

Susan – “Control”

Susan talks about controlling our death.

Susan – “How love changes”

Susan discusses the concept of how love changes and the role of the dying spouse.

Susan – “Frontline caregivers”

Susan talks about how critical and wonderful frontline caregivers are and the importance of connecting with them.

Susan – “Celebration”

Susan discuss her thoughts on why the process of dying shouldn’t be clinical.

Susan – “Dying well”

Susan talks about how the individual decides to go about the process of dying.

Susan – “Relationships”

Susan explains the shift that happens with yourself and your relationships.

Susan – “Hope”

Susan talks about being pragmatic about her life and hopeful for her daughter.

Susan – “My story”

Susan talks about her story and her decision to stop chemotherapy.