I Am A Professional

Alongside

That is also our best, and only role, when supporting a person with a developmental disability to grieve. We must be the one that comes alongside. There is no closer place we can get to. We must be present, be with, perhaps not understanding or comprehending what the person we support is experiencing, but alongside them nonetheless. We must be there, ready to provide whatever we can discover of their unique need in grief.

Christian – COVID amplified the inequities in society

Christian talks about those that have very little and how COVID amplified their difficulties

Kristal – Grieving the Whole Person

Kristal discusses the importance of recognizing and grieving the entire person who was lost – not just who they were before they had been using drugs.

The Reflection Room® project: How storytelling supports processing grief

The Reflection Room project is an evidence-based participatory art installation that was developed by researchers at the SE Research Centre and Memorial University in 2016. The project included a research component that evaluated the impact of Reflection Rooms as the project adapted over time to address changing needs.

Grief Busting Zine [Downloadable!]

This zine is designed by mental health professionals and contains information about grief, different types of grief we may experience, gentle reminders on how to move through grief, as well as tips for those who may be supporting someone in their life who is grieving.

Christian – Grieving spaces

Christian talks grieving spaces and people coming together when grieving

Caileigh – Grief and child behaviour

Caileigh explains when a child experiences grief or a traumatic grief experience, there’s often behaviour that comes from that. Grief impacts behaviour. And sometimes it can be outward behaviour and sometimes it can be internalized behaviour. The good news about grief and behaviour is that it can be managed and supported through effective communication, through therapy and through coping strategies.

Kristal – Attending Memorials as a Support Worker

Kristal discusses the importance of finding ways to honour people that have been lost and how they have impacted you. She speaks to how she often chooses not to attend public memorials for those she has lost as a support worker as they are often very overwhelming. Instead, she has her own personal rituals or ways of honouring those she has lost personally including opening a window. She discusses how this practice was used when she worked in palliative care.

Grief and Disability: Carrie’s Story

It has become clear to me over time that we have much work to do to ensure the delivery of disability-sensitive grief literacy and grief support. In March of 2022 my proposal for four 1-hour sessions was approved, we provided the program for 20 participants. My heart was full in each session.

My heart remains full of hope that conversations, education, and expertise about disability sensitive end of life care and grief support will gain momentum as more and more people join in on this vital conversation.

Kristal – Professional Experience and Work

Kristal discusses being a peer support woker, working on a one on one level with community members to help them with their goals related to substance abuse. She supports those in the community dealing with loss and grief. She speaks to everyone’s experience with loss and grief being very individual.

Grief Literacy and Developmental Disability

Grief literacy has become a popular topic, yet it is a topic that is untapped within the disability community, specifically within the developmental sector. The sector supports and empowers people with a developmental disability and consists of families, their loved ones and service providers.