I Am A Professional

Grief and Disability: Carrie’s Story

It has become clear to me over time that we have much work to do to ensure the delivery of disability-sensitive grief literacy and grief support. In March of 2022 my proposal for four 1-hour sessions was approved, we provided the program for 20 participants. My heart was full in each session.

My heart remains full of hope that conversations, education, and expertise about disability sensitive end of life care and grief support will gain momentum as more and more people join in on this vital conversation.

Kristal – Grieving the Whole Person

Kristal discusses the importance of recognizing and grieving the entire person who was lost – not just who they were before they had been using drugs.

Christian – My process in grieving

Christian explains his grieving process and how it’s important to let people in, the power of community, and having a team that makes him feel loved and cared for

Caileigh – Through play children learn so much about their grief

Caileigh discussed how children learn so much about their grief through play. There’s less confusion, there’s less anxiety, there’s more awareness. For the child and the parent, there is more acceptance of grief.

Caileigh – My own grief and supporting others

Caileigh tells about her own grief and now it has given her a really powerful lens on how to support children going through grief as well. Along with her professional education and training, there is now a different perspective on grief and how that fits in with supporting others.

Caleigh – Play Session

Caileigh discusses child play sessions, how children can learn about confusing feelings of grief and ways to cope.

Kristal – Anger with Grief

Kristal discusses finding ways to channel her anger due to poor policy leading to deaths from drug poisoning and those individuals not having the support they needed. She discusses how human beings have the right to be flawed and should have the ability to grow, heal, and change.

Grief Literacy and Developmental Disability

Grief literacy has become a popular topic, yet it is a topic that is untapped within the disability community, specifically within the developmental sector. The sector supports and empowers people with a developmental disability and consists of families, their loved ones and service providers.

Jessica M – A Parking Lot Memorial

Jessica shares how her family gathered after her uncle died during COVID and how her family came up with a creative way of getting together in a parking lot.

The Reflection Room® project: How storytelling supports processing grief

The Reflection Room project is an evidence-based participatory art installation that was developed by researchers at the SE Research Centre and Memorial University in 2016. The project included a research component that evaluated the impact of Reflection Rooms as the project adapted over time to address changing needs.

Caileigh – Wanting to fix a grieving child

Caileigh gives advice about the desire to fix, especially to parents who are grieving themselves as well as supporting children who are grieving.

Alongside

That is also our best, and only role, when supporting a person with a developmental disability to grieve. We must be the one that comes alongside. There is no closer place we can get to. We must be present, be with, perhaps not understanding or comprehending what the person we support is experiencing, but alongside them nonetheless. We must be there, ready to provide whatever we can discover of their unique need in grief.