I Am A Professional

Grief and Disability: Carrie’s Story

It has become clear to me over time that we have much work to do to ensure the delivery of disability-sensitive grief literacy and grief support. In March of 2022 my proposal for four 1-hour sessions was approved, we provided the program for 20 participants. My heart was full in each session.

My heart remains full of hope that conversations, education, and expertise about disability sensitive end of life care and grief support will gain momentum as more and more people join in on this vital conversation.

Nicole – Power of Speaking About Lost Ones

Nicole discusses the importance of sharing memories of those lost to drug poisoning and speaking their names.

Grief and Parenting in the Disability Community

In this blog post, Carrie writes about being the parent and primary caregiver to a child with disabilities and grieving the loss of a child dying from their disabilities.

Caileigh – Through play children learn so much about their grief

Caileigh discussed how children learn so much about their grief through play. There’s less confusion, there’s less anxiety, there’s more awareness. For the child and the parent, there is more acceptance of grief.

Caileigh – A safe place to grow and heal

Caileigh talks about how accessing play therapy can support everybody. When children have that safe place to heal, everybody around them feels good and can heal, too.

Kristal – The Value of all Those Lost

Kristal emphasizes that the lives of those lost to drug poisoning had value, they were an opportunity that was lost, and that the community is missing so much in their absence.

Kristal – Grieving the Whole Person

Kristal discusses the importance of recognizing and grieving the entire person who was lost – not just who they were before they had been using drugs.

Grief Busting Zine [Downloadable!]

This zine is designed by mental health professionals and contains information about grief, different types of grief we may experience, gentle reminders on how to move through grief, as well as tips for those who may be supporting someone in their life who is grieving.

Alongside

That is also our best, and only role, when supporting a person with a developmental disability to grieve. We must be the one that comes alongside. There is no closer place we can get to. We must be present, be with, perhaps not understanding or comprehending what the person we support is experiencing, but alongside them nonetheless. We must be there, ready to provide whatever we can discover of their unique need in grief.

Kristal – Attending Memorials as a Support Worker

Kristal discusses the importance of finding ways to honour people that have been lost and how they have impacted you. She speaks to how she often chooses not to attend public memorials for those she has lost as a support worker as they are often very overwhelming. Instead, she has her own personal rituals or ways of honouring those she has lost personally including opening a window. She discusses how this practice was used when she worked in palliative care.

Left Out: Enfranchising Children’s Grief and Loss

By: Jessica Milette, MSW, RSW All human beings have the capacity to grieve: people with intellectual disabilities, those living with a traumatic brain injury, and children of all ages. However, many people can experience disenfranchised grief when someone dies. Disenfranchised grief is generally grief that is not usually openly acknowledged, socially accepted or publicly mourned.…

Caileigh – Parent Capacity

Caileigh discusses parent capacity and and how to support their child through their grief is all about inspiring them and empowering them so that they can help their child.