Posts by Grief Stories
Lyss – Losing My Mother
Lyss – Losing My Mother
Lyss discusses losing her mother and how her first thought was that her mother would never meet her kids Now being a mother herself brings back many memories of her.
Lyss – My Story
Lyss – My Story
Lyss talks about being 16 and her Mom dying from cancer. The second part of her story is about miscarriages
The Reflection Room® project: How storytelling supports processing grief
The Saint Elizabeth Foundation offers a project called the Reflection Room – a space for thinking and talking about dying, death, and grief.
The Reflection Room project is an evidence-based participatory art installation that was developed by researchers at the SE Research Centre and Memorial University in 2016. The project included a research component that evaluated the impact of Reflection Rooms as the project adapted over time to address changing needs.
The Reflection Room project was first developed to support people in community and healthcare settings to move from death-denying to death-discussing. From the first installation, the Reflection Room project has gone through three Phases of adaptation and continues to evolve.
Common elements across Reflection Rooms, whether they are set up to include an entire room, hallway, or corner of a room, include a quiet, calming space that invites visitors to read other people’s stories and post their own. The rooms are unstructured and unfacilitated, allowing visitors to engage with the space however they wish.
Over a five-year period from 2016-2020, the Reflection Room project was installed in 62 places across Canada, including in conferences, art galleries, hospices, and hospitals (Phases 1 and 2). Over a thousand stories were shared by individuals during their visits to these various Reflection Rooms. Results from the study from this period showed that storytelling can be an important part of grieving.
In 2020, Phase 3 of its adaptation and evaluation began with the SE Research Centre being asked to expand the reach of the Reflection Room to long-term care home communities in Ontario to respond to some of the accumulated pandemic-related grief in those communities. With the support of the Saint Elizabeth Foundation, Ontario Health Central, Family Councils Ontario, Ontario Centres for Learning, Research and Innovation in Long-Term Care, and Ontario Association of Residents’ Councils, over 50 homes signed up to host a Reflection Room®. In order to adapt to the environment of long-term care homes, an easy-to-set-up ‘kit’ incorporating instructions and materials (e.g., Reflection Cards, a red curtain to display Reflection Cards, candles, etc.) was developed and sent to homes free of cost. Overwhelmingly positive feedback has demonstrated that the Rooms support communities to work through grief by having a quiet space to rest and reflect, disclose emotions, process thoughts, and feel connected to others through sharing stories. The project often is complementary to other existing initiatives in long-term care homes such as palliative care committees and spiritual programs.
A collection of the stories shared over the course of the project is available to view on the Reflection Room website.
If you want to learn more about the project, contact foundation@sehc.com and listen to the Grief Stories podcast episode 64.
Neeliya Paripooranam, MSc, is a Project and Communications Manager at the SE Research Centre, overseeing the Reflection Room® project. Celina Carter, RN PhD, is a Senior Research Associate at the SE Research Centre. Paul Holyoke, PhD, is the Vice President, Research and Innovation at SE Health. Justine Giosa, PhD, is the Scientific Director, SE Research Centre and Adjunct Assistant Professor in the School of Public Health Sciences at the University of Waterloo. Hana Irving, MA, is the Director, Philanthropic Programs for the Saint Elizabeth Foundation.
Kate – Triggers
Kate – Triggers
Kate discusses how she deals with her emotions when something triggers her grief
Kate – Getting support
Kate – Getting support
Kate talks about how difficult it is to ask for support
Kate – Trust and listening
Kate – Trust and listening
Kate – explains how having someone you trust is super important so that you can have a space space to go to
Kate – COVID and grieving with my parents
Kate – COVID and grieving with my parents
Kate shares about how COVID was stress on top of dealing with the loss of her brother
Kate – Stigma
Kate – Stigma
Kate discusses how difficult the stigma is to deal with
Kate – Things I do that help
Kate – Things I do that help
Kate talks about how art, hiking and visiting the cemetery can be very therapeutic
Kate – My art and my brother
Kate – My art and my brother
Kate talks about being an artist and expression through art can remind her of her brothers encouragement
Kate – My story
Kate – My story
Kate tells her story of being away when her brother died of an opioid overdose
Kate – Advice to my younger self
Kate – Advice to my younger self
Kate explains things being authentic and honest to herself has been very valuable